Agenda
The detailed programme will be published soon...
Day 1
Wednesday 14 October 2026
11:00
IPOPI Bus departure
from Van der Valk Congrès Liège Hotel to the MECC Congress Venue in Maastricht
11:50
Registration & Lunch
at Exhibition Area
13:00
Session 1: Welcome Session
Moderator: Martine Pergent
IPOPI Room: Brussels&Paris room - Level 0
13:00 – 13:15 IPOPI’s Welcome by Martine Pergent, IPOPI President
13:15 – 13:20 SAS Welcome to Maastricht by Sian van den Bogaerdt and Janine Bastiaans, SAS (NMO the Netherlands)
13:20 – 14:00
• Andrea Gressani Keynote lecture: What is new in gastrointestinal condition & treatment? by Prof Charlotte Cunningham-Rundles (USA)
• Q&A
14:00 – 15:15
Workshop: the PID/SID ecosystem – Patient-centredness – Patient choice by Martine Pergent, IPOPI President and Miriam Ferreira, NMO Programmes Manager
(Workshop sponsored by Takeda)
15:15
Coffee Break
Praetorium – Patio next to our room (Level 0)
15:45
Session 2: Respiratory Health Challenges and Advancing Patient-Centered Research
Moderator: Dimas Adhi Sugiharto
IPOPI Room: Brussels&Paris room - Level 0
15:45 – 16:15 Keynote lecture: Respiratory health challenges by Prof Hélène Salvator (France)
16:15 – 17:05 How to get involved in patient-centred research
• Impact of patient organisations on research by Prof Frank Staal (The Netherlands)
• Understanding research, clinical trials and patient outcomes by Dr Maartje Blom (the Netherlands)
• Put your research knowledge to the test by Whitney Ayoub, IPOPI Board Member, and Lúcia Mamede, IPOPI Medical Affairs Project Manager
• Q&A
17:15
Congress joint opening ceremony
ESID – INGID-IPOPI ceremony
Plennary 1/South Hall - Level 1
17:40
Session 3 – The NMO marketplace
Praetorium (Patio next to our room) - Level 0
Moderators: Roberta Anido, Laura Luzzi and María Avilés
17:40 – 19:00 Showcase of NMO projects and achievements
19:00
Welcome Reception
19:00 – 20:00 Welcome Reception
20:15
IPOPI Bus departure
from Congress Venue to Van der Valk Congrès Liège Hotel
(registration mandatory)
Day 2
Thursday 15 October 2026
08:00
Bus departure
from Van der Valk Congrès Liège Hotel to the MECC Congress Venue in Maastricht
(registration mandatory)
09:00
Session 4 – Access
Moderator: Roberta Anido
IPOPI Room: Brussels&Paris room - Level 0
09:00 – 09:15 Spotlight
09:15 – 10:30 Navigating early access – empowering the PID community Contents
(Workshop sponsored by Savara)
• The journey of a medicine by Leire Solis, IPOPI Health Policy and Advocacy Director
• What existing early access regulatory schemes by Gabriela Cuervo, Early Access Consultant, Savara
• Hospital exemption by Dr Alessandra Magnani (Spain)
• Workshop on the “role of NMOs in…”
- The process of setting up a research programme by Dr Marlène Pasquet (France) and Cynthia Olotch, IPOPI Board Member, Kenya
- Medicine assessment by Leire Solis, David Jiménez, AEDIP (NMO Spain) and Whitney Ayoub, IPOPI Board Member (Canada)
- Medicine coverage by Vivian Kohlberg (NMO Bolivia) and Bruce Lim, IPOPI Vice-President (Malaysia)
- Access to treatment abroad by Dr Bénédict Neven (France) and Otilia Stanga, IPOPI Treasurer (Romania)
- Pharmacovigilance by Anne-Sophie Henry-Eude (NMO France) and Roberta Anido, IPOPI Board Member (Argentina)
- Clinical trial by Dr Maria Pia Cicalese (Italy) and Tracy Shaw, IPOPI Board Member (USA)
10:30 - 11:15 Worldwide Plasma – Personalised medicine
• Latest updates in immunoglobulins: IgA and IgM by Prof Martin van Hagen, IPOPI MAP Vice-Chair
• Plasma and geopolitics by Matthew Hotcko, Marketing Research Bureau
• IPOPI’s positioning on plasma by Johan Prévot, IPOPI Executive Director
• NMO example on working to improve plasma collection by Juçaíra Giusti, ELPIB (NMO Brazil)
• Q&A
11:15
Coffee Break
Praetorium – Patio next to our room (Level 0)
11:45
Session 5 – Physical and mental health
Moderator: Otilia Stanga
IPOPI Room: Brussels&Paris room - Level 0
11:45 – 12:15 The power of data
• Collecting the right data for the right purpose by Leire Solis, IPOPI Health Policy and Advocacy Director
• Registry case: the upcoming ASID registry by Dr Diana Marangu-Boore (Kenya)
• NMO Case Study: Member Database by Maria Löfving Sonesson, PIO (NMO Sweden)
• Q&A
12:15 – 13:00 Mental health care(s) in PIDs! (Joint IPOPI-ESID-INGID session)
• The patient's perspective by Whitney Ayoub, IPOPI Board Member
• The physician's perspective by Dr Anne de Pagter, ESID
• The nurse's perspective by Julia Hews-Girard, PhD, RN, INGID
13:00
Lunch Break
Exhibition Area (Expo Foyer - Level 1)
IPOPI Group picture (Praetorium Patio next to our room - Level 0)
14:00
Session 6 – Economic Challenges in Immunodeficiency: Diagnosis, Testing, and Care
Moderator: Bruce Lim
IPOPI Room: Brussels&Paris room - Level 0
14:00 – 15:15
Economic and patient outcomes impact/cost of delayed and misdiagnosis for PIDs and SIDs
(Workshop sponsored by CSL Behring)
• Consequences of late and misdiagnosis on PIDs by Prof Isabelle Meyts (Belgium)
• Consequences of late and misdiagnosis on SIDs by Prof Stephen Jolles (United Kingdom)
• Economic impact of early diagnosis and treatment of IEIs: project in Spain by Prof Pere Soler Palacín (Spain)
• Understanding the broader value of immunoglobulin therapy in IEI - Insights from a French social return on investment analysis by Batyrkhan Kuatov, CSL-Behring
• Q&A
• Assessing the national impact of delays and misdiagnoses in PIDs and SIDs by Martine Pergent, IPOPI President and Dimas Adhi Sugiharto, IPOPI Board Member
15:15 – 16:00 Genetic testing: access and economics
• Understanding genetic testing: What it is and the methods used by Dr Cybel Mehawej (Lebanon)
• Methods to implement genetic by Prof Jérémie Rosain (France)
• NMO case: What choice for NMOs who want to promote or financially support genetic testing nationally by Otilia Stanga, IPOPI Board Member
• Panel discussion
16:00
Coffee Break
Praetorium – Patio next to our room (Level 0)
16:30
Session 7 – MAP Speed-dating
Moderator: Dr Nizar Mahlaoui, Prof Martin van Hagen and Prof Silvia Sánchez-Ramón
16:30 – 17:30 IPOPI Medical Advisory Panel forum
Topics:
• Patient empowerment and shared decision-making by Prof Stuart Tangye (Australia); Dr Virgil Dalm (the Netherlands) and Dr Cecilia Poli (Chile)
• Immune dysregulation and associated conditions by Prof Silvia Sánchez-Ramón (Spain) and Prof Tadej Avčin (Slovenia)
• Genetic diagnosis by Prof Martin van Hagen (the Netherlands) and Prof Hirokazu Kanegane (Japan)
• AI in Health by Dr Nizar Mahlaoui (France)
• Lifelong care for people living with PIDs
• Personalised therapies by Prof Klaus Warnatz (Germany) and Prof Steven Holland (USA)
17:45
IPOPI Bus Departure
from Congress Venue to Van der Valk Congrès Liège Hotel (registration mandatory)
19:00
IPOPI PID Champion Awards Dinner
(by invitation only with mandatory registration)
Day 3
Friday 16 October 2026
08:00
IPOPI Bus departure
from Van der Valk Congrès Liège Hotel to the MECC Congress Venue in Maastricht
09:00
Session 8 – PIDs & SIDs
Moderator: Tracy Shaw
IPOPI Room: Brussels&Paris room - Level 0
9:00 – 9:15 Spotlight
by 09:15 – 10:30
Update on SIDs / PIDs
(Sponsored by Grifols)
• Introduce IPOPI’s position on PIDs/SIDs by Martine Pergent, IPOPI President
• Update on PIDs: a broader approach to the warning signs by Dr Jacques Rivière (Spain)
• Updates on SIDs – What connects them to PIDs? by Dr Virgil Dalm (the Netherlands)
• Testimonies from NMOs integrating SIDs into their mission by Andrea Maier-Neuner, DSAI (NMO Germany), Natalia Romeo, AAPIDP (NMO Argentina), Tracy Shaw, IDF (NMO USA).
• IPOPI resources by Tracy Shaw, IPOPI Board Member and Lúcia Mamede, IPOPI Medical Affairs Project Manager
• Q&A
10:30
Coffee Break
Praetorium – Patio next to our room (Level 0)
11:00
Session 9 – Annual General Meeting
Moderators: Martine Pergent and Johan Prévot
IPOPI Room: Brussels&Paris room - Level 0
11:00 – 12:00 IPOPI Annual General Meeting (open to IPOPI members only)
12:00
Session 10 – Advanced Therapies (Part 1)
Moderator: Cynthia Olotch
IPOPI Room: Brussels&Paris room - Level 0
12:00 – 12:45
• Transplant: where are we? by Prof Despina Moshous, ESID President
• Transplant follow-up by Dr Reem Elfeky (Egypt/UK)
• Biotherapies, targeted therapies, bio-similars: Access & Management by Prof Klaus Warnatz (Germany)
• Q&A
12:45
Lunch Break
Exhibition Area (Expo Foyer - Level 1)
13:45
Session 11 – Advanced therapies (Part 2)
Moderator: Whitney Ayoub
IPOPI Room: Brussels&Paris room - Level 0
13:45 – 14:30
Hot spots in the patient journey (Joint IPOPI-INGID session)
• Transition care/adult immunologists by Dr Nizar Mahlaoui, IPOPI MAP Chair
• Women and PIDs by Prof Siobhan Burns (United Kingdom)
• PID in golden years by Sarita Workman, INGID Board Member
• Q&A
14:30 – 15:45
Gene Therapy: Development, Latest Advances, and Patient Perspective
(Educational Grant from Fondazione Telethon)
• Set the scene: Experience of a patient undergoing gene therapy
• ABC of gene therapy by Prof Alessandro Aiuti (Italy)
• Latest and future advances by Prof Claire Booth (UK)
• Just like home programme by Federico Fraschetta (Italy)
• Q&A
• Panel discussion: What action to improve access? by Prof Alessandro Aiuti (Italy), Prof Claire Booth (the United Kingdom) and Johan Prévot, IPOPI Executive Director
15:45
Break
Praetorium – Patio next to our room (Level 0)
16:00
Session 12 - Next steps to the future
Moderator: Johan Prévot
IPOPI Room: Brussels&Paris room - Level 0
16:00 – 16:25 Look at 2027-28: IPOPI’s activities by IPOPI Staff
16:25 – 16:30 Closure of the meeting by Martine Pergent, IPOPI President
16:30
Bus departure for the IPOPI social activity
(by invitation only with mandatory registration)
17:00
Social Activity
Maastricht walking tour
(by invitation only with mandatory registration)
19:00
IPOPI Bus departure
From city center to Van der Valk Congrès Liège Hotel
